Hello, It is me again

So, I found a website that is for chronic fatigue! I am kind of excited about it, but not at the same time. I guess my moods change a lot and right now I am in the "no clue what to do, and nothing seems to be helping". So maybe I can see what others do for their own chronic fatigue. I have posted on their forum and thought I would post here what I posted there. 

"Hello,
I am sitting up at 3 am unable to sleep. My sleeping pattern seems to be all over the place, and it is not fun. I just came across this website, and maybe I  can relate with some of the other people on here, because I haven't really come across anyone else with chronic fatigue. I have had it for three years. I was really active before I came down with the mono virrus. It has been a rough ride. The mono virrus has been tested negative now, but I am not any where near where I used to be. I have my up days and my down days. I started a blog and I like to rant and rave on there :)   I am in my twentys and was one semester away from graduating when I got mono, it then took another year and a half to get my degree. I was only able to take one or two classes a semester, after the worst part of mono was over. Most days I just don't know what to do, and I feel helpless. I am lucky to have a very supportive husband and that he is able to make enough that I don't have to work. Although I would really like to have  a job, I just don't know how I would be able to handle one because everyday is different. I feel really bad! I know I shouldn't feel guilty, but I do! I feel like others judge me and don't believe me. I was always the one who wanted to go to school, learns lots, get a job, and have a family.  About in that order too, at least I got the degree:)  I really wouldn't wish CFS on anyone,  ever!! I am always worried about what other people think of me, It is hard to make other people understand and I feel alone a lot of the time. I have been to several doctors and nothing seems to ever come of it. I have even tried the wholistic doctors, but they don't seem to help either."

I also found this top ten list to be EXACTLY how I feel! IT IS JUST SO TRUE!!!
"1. CFS is real.
“I’m not making this up.”
“My symptoms are very real even though you can’t see them.”
“I am sick with a real disease and I’m doing the best I can.”

2. It is very debilitating and disabling.
“CFS is as disabling as HIV, cancer and MS.”
“Staying at home is not a ‘fun vacation from reality.’”
“CFS is absolutely life-altering.”

3. The fatigue is very intense.
“It’s more than being tired.”
“My energy is very limited.”
“I understand you’re tired, but it’s not the same as CFS.”

4. Looks can be deceiving.
“I don’t look as bad as I feel inside.”
“Even when I look good, I feel awful.”
“Just because I look okay now, know that I’ll pay for it later.”

5. CFS is unpredictable.
“I don’t know from one day to the next how I’ll feel.”
“I have no control over how I feel.”
“I need to be flexible in planning things.”

6. It has nothing to do with being lazy.
“I wish I could accomplish more each day than I can.”
“Even simple things are often beyond my ability.”
“I’m not trying to get out of doing something when I say I can’t.”

7. Words don’t do CFS justice.
“There’s no way to accurately describe how bad I feel.”
“I still hurt as badly 20 years later as I did the first day I got sick.”
“Even when I don’t talk about it, I still feel sick.”

8. CFS is very isolating.
“I am often lonely and alone.”
“Life moves on without me.”
“Nobody understands what I’m going through.”

9. Your understanding is important.
“I am so grateful for my family’s support.”
“I am very lucky to have their understanding. It makes life bearable.”
“I still need quality life experiences and to be involved.”

10. CFS is not a choice.
“I don’t want to be this sick.”
“I miss the person I used to be.”
“It’s so sad to miss out on so many things in life.”