Well Hello to my 11 followers,
The following is me ranting about sleep and then about my doctors appointment I had recenlty.
So just FYI, It is long and stuff and you don't need to read it :) Mostly for my documentation.
I have been terrible at updating recently. Right now I am waiting for this sleeping pill to kick in, Yes it is 1:30 in the morning..... Isnt that the best time to write a blog post, it seems like it. Why can't my brain shut off? I am jealous of people who can just lay down and fall asleep. I usually am fighting a couple hours just to fall asleep. My doctor contributes the insomnia to my CFS. It is pretty common to have insomnia when you have it apparently. Weird I know, sometime I just sleep and sleep and sleep.....Like for days, I mean I get up and eat and maybe try to stay awake for an hour or two, but then I am so drained I go right back to sleep. I hate those days, but they only last usually for a couple of days.
My sister Skype me and I love it, but she always sees me in bed. I don't like being in bed all the time....But why am I so wide awake at night sometimes. I purposefully drag myself out of bed at around noon, and make myself stay awake the rest of the day. It takes hours just to feel like I can function normally and then my body seems to be awake in the late afternoon and evenings.....and I get a little sleepy so I go and lay down, but I can't fall asleep. I just struggle and struggle. Counting sheep does not help. I seem to finally fall asleep after hours of trying, once I am asleep I have no problem staying asleep.
My life is the same as always, nothing really new has happened. It is the season of everyone getting sick, so I must try and keep away from all the people who are sick, because then I am in bed for at least a week.
I had a doctors appointment on Monday. I really love the doctor I go to because she specializes in CFS. I feel so lucky to have found this doctors office. Anyways, we talked about my sleep. I have a big dependency on Ambien and I have not taken it for a whole week and a half, maybe two weeks. It has been extremely difficult and I was up most the nights the first week without it, and I was wishing I had some so bad! I think I have made it through the worst part of it. Now at least I am asleep by 2 am. This is the third night I have been on this drug and I am not sure I feel like it is working. I am supposed to take up to so many doses to fall asleep. Well I am on my third dose and I am not going to go any higher then that....Still within what the doctor prescribed, but I hate taking so many pills. I also was able to get a full lean test done and surprise surprise I have OI (orthostatic intolerance) or some people refer to it as POTS. It was very interesting to see the results.
My doctor thinks that my heart is perfectly normal, it just everything else is not really getting the blood back to my heart sufficiently. That is why compression helps. I am currently wearing compression daily on knees down, and half the time on my arms. My arms have been in pain, but the compression arm sleeves really help.
Oh I just remembered something fun I did, On Sunday I was able to go to my sisters house and play games in the evening with her family, it was a really fun evening. We played betrayal at the house on the hill with the expansion that recently came out. It seemed the haunt that we got wasn't
at well written as it could have been, but we eventually understood what we were supposed to do and had fun playing it.
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| Ignore all my craft stuff in the background. |
So I just felt like this long post needed a picture! So here you go, this is me right now! Oh how lovely my hair is, I straightened it today. Oh that is another thing. A couple of months ago I got a perm. I love the curls, but I hate how it has made my hair unhealthy. I think it would have been better if I hadn't colored my hair a month before. I am giving it a break for now and not getting it dyed for the winter. hopefully to let it grow out and get healthier feeling.
Wow this is a really long post! Kudos to you if you have read the whole thing!
Thank you all for being you!
Signing off at 1:57
Krista Lyn
