January

Oh January oh January! How you haunt me sometimes!

The winter months are always so hard on me, and it seems like it always is the worst in January! Last year I had the whole Rib and weird side pain  going on, and that was a nightmare. This January (knock on wood) is going better than last January.  I have doubled my vitamin D intake and that has helped my arm aches (at least I hope that is what is helping) a lot along with the arm compression.

I am so silly, I love planting seeds and watching them grow, I bought myself a little jiffy greenhouse and I am going to start planting some things. I will take a picture and show you, I don't even have a yard to put anything I grow in, but I don't care I will give them away when the time comes :)

So my husband and I have made up our minds finally on getting a house! I am super excited because we are building! YAY! We have found our floor plan, our builder, and the lad it is going to go on, But they can't start building it until about  March. So it will still be a bit before we move in, but hopefully by next Christmas we will be in a house! This is the one thing I am looking forward to this year! I never intended to stay in this apartment as long as we have, but we were so indecisive about what we wanted and where we wanted it. I am sure in the months to come you will be getting picture updates on the building of our house!

I got a membership to a gym! I decided that I should try it out and see how it goes, I am only doing strength training as per doctor's orders, I am not supposed  to do aerobic exercise as it will make me have serious PEM, and I hate when I have that! I have only gone twice so far and bring lysol wipes with me to disinfect all parts of the machine I will be touching before I use it. Since it is right in the middle of the sick season, I would prefer not to get sick to avoid being in bed for weeks at a time. So no judging me if you see me at the gym :). I really only can get up to about 10 minutes and then I am hurting,  but they have the hydro massage beds there....oooh they feel nice and I have done them both times and it has helped a lot with the pain. I hope to try and go at least twice a weak! So wish me luck, and we shall see if this helps me feel any better.

If the time is posted with this, yes you can see that is is really early in the morning.....no I have not fallen asleep yet, my sleep has been all over the place lately, trying new meds for that.... I miss my ambien.....yes, I sound like an ambien addict.....but it has been the only thing that really helps me get on a normal sleeping schedule, but it is just so addictive.....I don't like being on it.....so it is a love hate relationship I guess, but I am not on it right now, and I hope to not go back on it.

Thanks for reading!

Get Prepared for a long post!

Well Hello to my 11 followers,

The following is me ranting about sleep and then about my doctors appointment I had recenlty.

So just FYI, It is long and stuff and you don't need to read it :) Mostly for my documentation. 

I have been terrible at updating recently. Right now I am waiting for this sleeping pill to kick in, Yes it is 1:30 in the morning..... Isnt that the best time to write a blog post, it seems like it. Why can't my brain shut off? I am jealous of people who can just lay down and fall asleep. I usually am fighting a couple hours just to fall asleep. My doctor contributes the insomnia to my CFS. It is pretty common to have insomnia when you have it apparently. Weird I know, sometime I just sleep and sleep and sleep.....Like for days, I mean I get up and eat and maybe try to stay awake for an hour or two, but then I am so drained I go right back to sleep. I hate those days, but they only last usually for a couple of days.  

My sister Skype me and I love it, but she always sees me in bed. I don't like being in bed all the time....But why am I so wide awake at night sometimes. I purposefully drag myself out of bed at around noon, and make myself stay awake the rest of the day. It takes hours just to feel like I can function normally and then my body seems to be awake in the late afternoon and evenings.....and I get a little sleepy so I go and lay down, but I can't fall asleep. I just struggle and struggle. Counting sheep does not help.  I seem to finally fall asleep after hours of trying, once I am asleep I have no problem staying asleep. 

My life is the same as always, nothing really new has happened. It is the season of everyone getting sick, so I must try and keep away from all the people who are sick, because then I am in bed for at least a week. 

I had a doctors appointment on Monday. I really love the doctor I go to because she specializes in CFS. I feel so lucky to have found this doctors office. Anyways, we talked about my sleep. I have a big dependency on Ambien and I have not taken it for a whole week and a half, maybe two weeks. It has been extremely difficult and I  was up most the nights the first week without it, and I was wishing I had some so bad! I think I have made it through the worst part of it. Now at least I am asleep by 2 am. This is the third night I have been on this drug and I am not sure I feel like it is working. I am supposed to take up to so many doses to fall asleep. Well I am on my third dose and I am not going to go any higher then that....Still within what the doctor prescribed, but I hate taking so many pills.  I also was able to get a full lean test done and surprise surprise I have  OI (orthostatic intolerance) or some people refer to it as POTS. It was very interesting to see the results. 

My doctor thinks that my heart is perfectly normal, it just everything else is not really getting the blood back to my heart sufficiently. That is why compression helps. I am currently wearing compression daily on knees down, and half the time on my arms. My arms have been in pain, but the compression arm sleeves really help.

Oh I just remembered something fun I did, On Sunday I was able to go to my sisters house and play games in the evening with her family, it was a really fun evening. We played betrayal at the house on the hill with the expansion that recently came out.  It seemed the haunt that we got wasn't

at well written as it could have been, but we eventually understood what we were supposed to do and had fun playing it.

Ignore all my craft stuff in the background.

So I just felt like this long post needed a picture! So here you go, this is me right now! Oh how lovely my hair is, I straightened it today. Oh that is another thing. A couple of months ago I got a perm. I love the curls, but I hate how it has made my hair unhealthy. I think it would have been better if I hadn't colored my hair a month before. I am giving it a break for now and not getting it dyed for the winter. hopefully to let it grow out and get healthier feeling.

Wow this is a really long post! Kudos to you if  you have read the whole thing!

Thank you all for being you! 

Signing off at 1:57

Krista Lyn

Wow

I slept for like a whole day......I hate when that happens..

Birthday

Today is my birthday! I really can't believe another year has gone by

I just got back from Yellowstone yesterday, it was a fun week. 

I was able to catch a rare geyser this year, called Fan and Mortar. This year it has gone off between every 4-5 days. It was on its fifth day without going and according to the geyser gazers on the radio it was having really good signs of going. So I drove to the Lower Ham store, and walked very slowly, with many stops down to the geyser....It isn't that far of a walk for a non-CFIDS person :) Probably not even a mile, but alas this is my life. I had my nice big umbrella, Plenty of water, my compression socks on and I was off! Although my awesome husband was carrying all of this for me. It was perfect! He is a foot taller then me and so when he holds the umbrella it covers me perfectly (and also him, so it works out for both of us). Most of the other family members were down there, and we got there perfect timing. I will have to post a video of RB explaining why the water levels and stuff looked good when I get it edited. I probably only waited a half hour and BOOM it was going off! It had a bit of a rocky start and kept teasing all the really serious Geyser Gazers :) It was so spectacular! I have a video of the whole eruption, including me almost being run over by a crowd of screaming people because the sudden shift of wind made a lot of water come raining down on them, it was great! 

Other geysers I got to see :

Grand Geyser!

Beehive Geyser!

Old Faithful Geyser (of course)!

Mugwump (very small geyser but it hasn;t been active in years and years)

Lion Geyser ( from a bit of a distance)

Castle Geyser!

 I have to give a big shout out to my sister in law! I would not have seen about half of these geysers if she didn't push my around in a wheel chair on geyser hill! THANK YOU!!!!

It's hard to drive over about 30 minutes for me..... so when my doctors an hour and a half away it causes me major anxiety... because getting there is one thing, and then getting home is another issue....hmmmmmmm...... but it's the only doctor in the state that's specializes in cfids......so yeah..I just need to plan better..

And so it comes to writing all my feelings down

I don't know if I will ever publish this, but this is how I have dealt with things my whole life.

I have decided that my mother and her new husband are not welcome in my house anymore.

Maybe  I will write down my whole story someday you will all understand, but as of right now I do not care if you judge me and say that is rude. You think, That is your mother how could you say that.

Well I have just kicked them out of the house...

My mom believes that she is some sort of prophetess and she can tell you exactly what to do because it is coming from god and the worst part is, that her husband believes everything she comes up with.

When I was younger, my mom basically kidnapped me and my siblings. She took us on some crazy adventures and my dad had no clue where 4 of his kids were for what seemed like eternity to him, I remember it very well and it seemed like eternity to me too. Waking up each day and having my mom drive us to a different hotel and give them unknown names. One night she told me the next day we were going on  jet and never coming back. I was scared out of my mind and I don't think any 9 year old should ever have to go through this.  I missed my dad and knew that I just needed to get back to him where it was safe.....
See my mom is bi-polar.....manic depressive...what ever you want to call it, and she had gone off the deep end. She would say things like "your dad killed your brother, by sawing off the tree branch he was playing on." see my oldest brother was not with us.
The other things she would say when I said I wanted to go home were " where is home?" "It does not exsist?"  She had no clue what she was doing and she was crazy and I knew it! It was one of the scariest times of my life and I do not talk about it lightly or to hardly anyone......But everytime my mom visits it brings up these crazy times and I can not stand it. She acts like she is all the perfect angel and my dad is a horrible devil.....side note my dad was granted full custody of his kids......She blames it on him and believes that the way we are is because of him!  Well I am proud to say that the way I am is because Exactly how my father raised me and that is exactly who I want to be!!


I am sorry and I have just decided I am going to post this...... I might delete it when I am not so mad and I wrote it quickly and I am so sorry for all the mistakes.... in this blog, but I feel like I have just held it in for so long.... I will write my whole story some day, but that is not today......

Dog, Car and CFIDS update

Hello
I was on a good streak there for a while and then I disappeared, but don't worry it was just a short break.  Only a month.

Today I am in  a solemn mood,  Another one of my family dogs died yesterday. It was sudden, he wasn't really old. He was happy, go lucky dog, running around having the time of his life, and then he just fell over yesterday and died. I am suspecting a heart attack or something of that nature. I just played with him on Sunday, and now he is gone. I don't know which is better to deal with....watching a dog get old and having to go through the pain of getting older or just all the sudden having them be gone, no pain, just gone......... SO now I am going to tell stories of him

His name was Nacho, and he was beloved by many. He was rescued from death row by my father. He had just loved digging through peoples garbage's way to much, and it had landed him in the pound with no one to claim him. I am not sure how my father found out about him, but soon enough he was on the farm and loving life. Not many garbage's to raid out there, because not many neighbors.  Although he did get put in doggy jail once or twice and again my father came to the rescue. At first he was an inside dog for the most part, until the day he figured out how to jump on the table and snarfed a beloved sandwich down in under ten seconds! From that day on he was an outside dog, but no worries, I believe he enjoyed having his home be outside. He had his own doggy house, plenty of land to roam, and all the dog food he could eat. He seemed to make it a tradition to jog down to my aunts house and get fed from her all the time. He would roam to other neighbors houses to be petted and loved on, most of them knew where he belonged, and when my father would come home from work. He would trot on back down to hang out with him in the garage or anywhere my father would be working. One day I was out there, and needed to go outside quick and so I threw on my dads coat. Nacho Freaked out, and just wanted to be held and petted by me, it was hilarious because he could smell so much of my father on me.  Sweetest dog ever, and he will be missed! I ordered the cement to make his stepping stone. I will have to post pictures of it when it is done.


That is nacho in a nutshell. I am still in shock. He is just gone.

Summer has officially came and of course it is hot, and you will probably hear me complain about how hot my apartment is because we have a swamp cooler instead of central air, but I do have a portable AC that seems to just keep my bedroom cool enough. So there is a plus.

We bought a new car this past week and I love it! Although RB is having major remorse over buying it because of something the car fax reported, I am having it checked out thoroughly and so hopefully all is well with it. It is a hybrid and so quite!


Time for my CFIDS Update: I have been doing terrible at taking this new med, so today I installed an app on my phone to shout at me when to take it. I am resolved to doing better and making more notes on how it is going. My arm has been feeling weird. It is my left arm, and it is on the underneath part. It has been happening for a couple of days.....not sure what to make of it. Besides that everything is the same old here in the CFIDS department. Tired lots, OI issues, sleep issues, you know stuff that normally comes with CFIDS.