The only time I ever write is at 3 am

 I hate trying to fall asleep.  I must be a night owl because I feel tired and just am dragging myself through out the day and then night comes and its like my brain is finally waking up. It doesn't help that I took midol, it has caffeine and of course that is going to wake up my brain. Another Reason is because I have been on sleeping pills for three days now.  I really don't want to be on them, but when I am not on them, my sleeping habits just seem to get worse and worse. I need something natural that works.  I want to stay off them long enough to see if this other medicine can start working with keeping the adrenaline levels down at night, but I think that I am still dependent on the sleeping pills so my body isn't going to adjust yet.

Growing up I never wanted to be one of those people who always had to be taking pills,  I roll my eyes at that now because how was I supposed to know that I was going to get a chornic illness.


Still no dig date in site....yes it was supposed to be June and now it is the middle of July and I haven't heard anything for weeks...Sometimes I wonder if I it just ain't meant to be....

I have been learning to play the Ukulele. Maybe if I get brave enough some day I will record and show you all my progress.

My brother in law is getting married this week, time sure does fly by fast and I am so excited for them both! I am so excited to be getting a new sister in law!

My brother is in Canada right now. Lol I kept forgetting that he was going and I found out yesterday he had already left.

My sister hurt her back and it has been a crazy couple of weeks for her, health insurance is a joke at times.....Why should the people who don't have Medical degrees get to decide what should be done or not...its a bit ridiculous....I hope she is on the mend, physical therapy seems to be helping

I have been attempting to organize my craft room. I bought two shelving units that have helped greatly in this endeavor.

My swamp cooler is driving me insane, I really don't like how it gets things so humid and I feel like everything is just soaked. Half the time I would rather just deal with the heat (to some degree). We have a portable AC but that thing has a hard time just keeping my room cool,  I can't usually get it as cool as I would like, but it is better then nothing.

This next month is going to be busy (at least for me) and then looking ahead and seeing so much going on gets my anxiety going a bit crazy (thank goodness for anti anxiety meds, or I would be much worse off). I just have to tell my brain (at least when it will listen to me, sometimes it can be an uncontrolled anxiety) to just take it a day at a time, and I have left it so my plans can be changed if needs be, mostly it would be me staying home and have RB go off and do fun things without me, but that will be just fine. Usually what causes me lots of anxiety is knowingly going to put myself through an uncontrollable situation.  Examples.....Airplanes, Vacations,  someone else driving and  me not knowing where we are going, stuff like that....

Oh summer, how you make me happy and haunt me at the same time

Yes! I love summer and warmer weather!

But then when you have never gotten 100% back to what you felt like before you got sick...it starts to haunt you, does that make sense? I want to go run and play, but can't. Still love sitting out in the warm weather, so it still makes me happy that it is nice and sunny.

Let's see what has been new in my life.....really nothing much

My dig date is still undetermined....yeah it was supposed to be this month, but There still is no road built....I am getting annoyed with just waiting and at times I wonder if I should just not build....just the waiting game and its making me second guess my decision to build.

My arms hurt....so It seems I can't do much today.

Oh wow,

Hello April

I have decided I am famous

lol just kidding

Does anyone else get really hyper/excited/anxiety when they take Excedrin, I know it is because of the caffeine, but seriously ugh.....

Lets see

I ordered computer parts and built my own computer! Along with my husband and youtube :) I love how so much information is just so easily available and I can do stuff like this, Next thing I am going to continue learning about is Electrical stuff. I started a class, but couldn't quite finish because of my lovely CFS, but I still plan on reading the rest of the book and taking the rest of the quizzes.


I have finalized all my house plans and picked out all of the  stuff for the inside! yay! Our dig date still isn't until June, so probably won't be anything exciting going to on that front until then.

I have been sick with a nasty cold for two weeks, spent most of last week in bed and half of this week in bed. This is why I am so  paranoid about getting sick, I  have a compromised immune system and I am completely wiped out by a simple cold! I thought for a day or two I might have to go to the ER to get pumped with fluids.


I wan to talk for a little bit about why CFS is such a stupid name, Let me name just a few of the things I deal with,

1. Cold night sweats- I wake up drenched and freezing to the point that I am shaking! It is the worst!
2. Insomnia- Yes, it is weird, but Chronic fatigue people usually deal with insomnia, sometimes you   are just passed out and you are basically paralyzed with fatigue and other times your body is just so tired, but your brain is awake and you just lay there not sleeping at all.
3. Feeling Feverish- For a lot of people (including me) I seem to get very low grade fevers, so most people wouldn't even consider it a fever, but it sure feels like it.
4. Brain Fuzziness- It is just really hard to think straight, like sometimes how an antihistamine makes you feel, really head tired....Does that make sense?
5. ACHY MUSCLES- Mostly this occurs in my arms- Sometimes I cant even lift my arms over my head because of the pain, and this also occurs with me just trying to do anything with them, this is not a constant thing (which I am extremely grateful for), but taking Vitamin D3 helps to alleviate some of the pain. I usually take about 1500mg a day
6. The Fatigue- Of course there is also the fatigue. Next time you are sick and you get out of bed to do something and you feel like you are about a thousand pounds and you can't do anything because you feel so exhaust just doing anything, that is how it feels a lot of the time....

I also want to include some advice, and remember it is just advice and not law!

When I was first diagnosed/trying to figure out what was wrong with me, my doctor prescribed me  Ambein, thinking that I was feeling all these things because maybe I was not getting a good night sleep. Honestly I don't remember not being able to sleep back then, but I started on this regiment to see if It would help get me better. Some days I think that it just made me worse in ways. Doctors will tell you that this drug is not addictive, but you can get dependent on it. BUT I don't believe that, because I am telling you it is addictive in my opinion! My body craves it when I don't have it, It leaves you with an almost happy feeling that leaves you wanting more, how is that not addictive? And the worst part is trying to get off it,your body doesn't sleep because it has become dependent on it! So night after night you don't sleep or you don't sleep well until your body has gone through withdrawals. This can take a while (for me, at least a couple weeks). I have been on and off the ambien train for 7 years and I wish I never would have started...but I didn't know it would be like this.........

UGH

Well Here it is in February all ready.

This week has not been fun at all.  When I start on a downward trend like I have for this week I am constantly thinking what I could have to done to avoid getting this episode of "laying in bed feeling like I am going to pass out every time I get up and try and do something", ( yeah, I know I am being dramatic, but I get kind of crazy being coupped up).  Was it going to the gym on Monday and overdoing it? Was it the cupcakes I had to many of? was it a type of food that I usually don't eat? I have no clue and I guess maybe it is not preventable and it its just something my body does, Maybe it is my ebstien barr virus acting up?

 I have had a bad ear ache since yesterday and the the side of my face is in pain.

January

Oh January oh January! How you haunt me sometimes!

The winter months are always so hard on me, and it seems like it always is the worst in January! Last year I had the whole Rib and weird side pain  going on, and that was a nightmare. This January (knock on wood) is going better than last January.  I have doubled my vitamin D intake and that has helped my arm aches (at least I hope that is what is helping) a lot along with the arm compression.

I am so silly, I love planting seeds and watching them grow, I bought myself a little jiffy greenhouse and I am going to start planting some things. I will take a picture and show you, I don't even have a yard to put anything I grow in, but I don't care I will give them away when the time comes :)

So my husband and I have made up our minds finally on getting a house! I am super excited because we are building! YAY! We have found our floor plan, our builder, and the lad it is going to go on, But they can't start building it until about  March. So it will still be a bit before we move in, but hopefully by next Christmas we will be in a house! This is the one thing I am looking forward to this year! I never intended to stay in this apartment as long as we have, but we were so indecisive about what we wanted and where we wanted it. I am sure in the months to come you will be getting picture updates on the building of our house!

I got a membership to a gym! I decided that I should try it out and see how it goes, I am only doing strength training as per doctor's orders, I am not supposed  to do aerobic exercise as it will make me have serious PEM, and I hate when I have that! I have only gone twice so far and bring lysol wipes with me to disinfect all parts of the machine I will be touching before I use it. Since it is right in the middle of the sick season, I would prefer not to get sick to avoid being in bed for weeks at a time. So no judging me if you see me at the gym :). I really only can get up to about 10 minutes and then I am hurting,  but they have the hydro massage beds there....oooh they feel nice and I have done them both times and it has helped a lot with the pain. I hope to try and go at least twice a weak! So wish me luck, and we shall see if this helps me feel any better.

If the time is posted with this, yes you can see that is is really early in the morning.....no I have not fallen asleep yet, my sleep has been all over the place lately, trying new meds for that.... I miss my ambien.....yes, I sound like an ambien addict.....but it has been the only thing that really helps me get on a normal sleeping schedule, but it is just so addictive.....I don't like being on it.....so it is a love hate relationship I guess, but I am not on it right now, and I hope to not go back on it.

Thanks for reading!

Get Prepared for a long post!

Well Hello to my 11 followers,

The following is me ranting about sleep and then about my doctors appointment I had recenlty.

So just FYI, It is long and stuff and you don't need to read it :) Mostly for my documentation. 

I have been terrible at updating recently. Right now I am waiting for this sleeping pill to kick in, Yes it is 1:30 in the morning..... Isnt that the best time to write a blog post, it seems like it. Why can't my brain shut off? I am jealous of people who can just lay down and fall asleep. I usually am fighting a couple hours just to fall asleep. My doctor contributes the insomnia to my CFS. It is pretty common to have insomnia when you have it apparently. Weird I know, sometime I just sleep and sleep and sleep.....Like for days, I mean I get up and eat and maybe try to stay awake for an hour or two, but then I am so drained I go right back to sleep. I hate those days, but they only last usually for a couple of days.  

My sister Skype me and I love it, but she always sees me in bed. I don't like being in bed all the time....But why am I so wide awake at night sometimes. I purposefully drag myself out of bed at around noon, and make myself stay awake the rest of the day. It takes hours just to feel like I can function normally and then my body seems to be awake in the late afternoon and evenings.....and I get a little sleepy so I go and lay down, but I can't fall asleep. I just struggle and struggle. Counting sheep does not help.  I seem to finally fall asleep after hours of trying, once I am asleep I have no problem staying asleep. 

My life is the same as always, nothing really new has happened. It is the season of everyone getting sick, so I must try and keep away from all the people who are sick, because then I am in bed for at least a week. 

I had a doctors appointment on Monday. I really love the doctor I go to because she specializes in CFS. I feel so lucky to have found this doctors office. Anyways, we talked about my sleep. I have a big dependency on Ambien and I have not taken it for a whole week and a half, maybe two weeks. It has been extremely difficult and I  was up most the nights the first week without it, and I was wishing I had some so bad! I think I have made it through the worst part of it. Now at least I am asleep by 2 am. This is the third night I have been on this drug and I am not sure I feel like it is working. I am supposed to take up to so many doses to fall asleep. Well I am on my third dose and I am not going to go any higher then that....Still within what the doctor prescribed, but I hate taking so many pills.  I also was able to get a full lean test done and surprise surprise I have  OI (orthostatic intolerance) or some people refer to it as POTS. It was very interesting to see the results. 

My doctor thinks that my heart is perfectly normal, it just everything else is not really getting the blood back to my heart sufficiently. That is why compression helps. I am currently wearing compression daily on knees down, and half the time on my arms. My arms have been in pain, but the compression arm sleeves really help.

Oh I just remembered something fun I did, On Sunday I was able to go to my sisters house and play games in the evening with her family, it was a really fun evening. We played betrayal at the house on the hill with the expansion that recently came out.  It seemed the haunt that we got wasn't

at well written as it could have been, but we eventually understood what we were supposed to do and had fun playing it.

Ignore all my craft stuff in the background.

So I just felt like this long post needed a picture! So here you go, this is me right now! Oh how lovely my hair is, I straightened it today. Oh that is another thing. A couple of months ago I got a perm. I love the curls, but I hate how it has made my hair unhealthy. I think it would have been better if I hadn't colored my hair a month before. I am giving it a break for now and not getting it dyed for the winter. hopefully to let it grow out and get healthier feeling.

Wow this is a really long post! Kudos to you if  you have read the whole thing!

Thank you all for being you! 

Signing off at 1:57

Krista Lyn

Wow

I slept for like a whole day......I hate when that happens..